Register Now For Denver Alzheimer’s Education Symposium

It’s that time of the year again. November 9 is the annual all day Education Symposium available to the public on multiple topics about dementia and Alzheimer’s disease. This is the 26th year for this event. Local as well as national experts on Alzheimer’s and dementia will be offering breakout sessions at the Hyatt Regency Denver Tech Center. Current research, clinical trials, strategies for caregivers, and complementary health approaches are just some of the sessions that are available. Early stage to end stage will be covered. Many local support resources will be onsite. The closing session will include a conversation with Glen Campbell’s family members including a musical performance by his daughter.

Click here to view the full day agenda and instructions for registration. http://act.alz.org/site/Calendar?id=121841&view=Detail

Congratulations to the Boulder Walk to End Alzheimer’s teams and committee members! The most money raised for any first year Walk organization in the U.S.!

 

 

Beware of Hospital Observation Status!

Recently the Centers for Medicare and Medicaid services proudly announced that hospital readmissions have decreased thus patient safety and care has increased. Unfortunately, it appears that the reason for this reduction is the 96% increase in labeling hospital patients as Observation status and not Inpatient admission status.

Why does this matter to you? Hospitals get penalizes if they have too many readmissions. To avoid this scenario, they are putting patients entering the hospital under Observation status instead of admitting them in the hospital as an Inpatient. This labeling system can greatly affect a Medicare patient’s wallet. Observation status is covered under Part B not Part A. So you will be required to pay 20% of your hospital bill instead of the $1,260 deductible. You will also be required to pay for all of the overly priced medications given to you in the hospital that would have been covered under Part A. In addition, if you require skilled nursing or rehabilitation after your hospital stay, you will be required to pay for all of the costs. In comparison, if you were admitted to the hospital as Inpatient and require skilled nursing/rehab, after a three day hospital stay, Medicare will pay for your costs.

To add to the confusion with this hospital labeling, the admitting physician will initially determine your status. Even if you are under Inpatient status, the hospital administrator can change that labeling without your knowledge. Furthermore, Medicare has audit contractors that may also change your status from what either the admitting physician or hospital administrator may deem appropriate.

What should you do? Confirm every day while you are in the hospital what your status is and if needed, work with an independent patient advocate to ensure your best interests are being addressed.

For more information about this topic, click on this link.

http://healthaffairs.org/blog/2015/08/27/quality-improvement-become-good-at-cheating-and-you-never-need-to-become-good-at-anything-else/

Easy To Implement Therapeutic Tools

“We live our lives forward, but we understand them backwards.”—Soren Kierkegaard

A life review and reminiscing are two very effective therapeutic tools to use with individuals living with dementia. Below is a comprehensive list of suggested questions to get you started. This list was created by the Hospice of Cincinnati. Friends and family can help obtain the information during multiple sessions. You may want to ask the same question at different times in case new information can be retrieved as well as to confirm answers.

Childhood (birth-13 years)

  • Location of birth:
  • Residence:
  • Formal experiences (spiritual/secular/education):
  • What do you remember most about your parents?
  • What do you remember most about your grandparents?
  • Who took care of you?
  • What are you favorite stories about your siblings?
  • What is your favorite childhood memory?
  • Did you have a favorite toy as a child?
  • Did you have any pets? If so, what were they? What were there names?
  • Who did you spend most of your time with as a child?
  • Who had the most significant influence on you as a child?

Adolescence (14-21 years)

  • Residence: Formal experiences (spiritual/secular/education/achievements/awards):
  • Were you a good student?
  • What did you do after school?
  • What did you do in the evenings? On weekends?
  • What was it like to be a teenager?
  • Who was your best friend?
  • What were your goals as a teenager?
  • Who was your first love and how did you meet?
  • Did you have a job as a teenager? What were your job duties?
  • What were your greatest lessons at this age?
  • Did you play a sport or participate in any activities?
  • Who taught you how to drive a car? What was your first car?
  • What was your favorite and least favorite thing about being a teenager?
  • Do you have any funny/embarrassing stories from when you were a teenager?
  • Did you vacation as a family? What was your favorite vacation?

Young Adulthood (22-35 years)

  • Home(s):
  • Spiritual experiences:
  • Educational achievements, awards:
  • Marriage, children:
  • Career choices, experiences, awards:
  • Travels, national service:
  • What was your main career?
  • How did you choose your particular career path?
  • Did you attend college? What college did you attend?
  • Did you get married? When did you know you wanted to be married? What was your wedding like?
  • Did you have children? What is your fondest memory about each of your children?
  • How did you choose your children’s names? Were they named after anyone?
  • What was the greatest thing you taught your children?
  • What were your goals as a young adult?
  • What was your favorite hobby? Did anyone share your hobby with you?
  • Did you have any struggles as a young adult you had to overcome?

Middle Adulthood (36-65 years)

  • Home(s):
  • Children, grandchildren:
  • Career experiences, achievements, awards:
  • Travels, national service:
  • Did you have any children/grand children? What is your favorite story about each?
  • What was the greatest thing you taught your children/grandchildren?
  • What were your goals as an adult?
  • What were your hobbies as an adult?
  • Did you have any struggles as an adult you had to overcome?
  • Did you have any regrets during this time?
  • What were your fondest memories during this time?

Older Adulthood (66-99 years)

  • Home(s):
  • Grandchildren, great-grandchildren:
  • Career experiences, achievements, awards:
  • Health challenges and outcomes:
  • What is your favorite story about your grandchildren/great-grandchildren?
  • What is your greatest accomplishment in life?
  • If you had a chance to go back in time, is there anything you would have done differently?
  • What was the happiest time of your life?
  • What do you want your family/friends to remember most about you?

Miscellaneous Questions

  • What was your favorite holiday to celebrate? What is your favorite holiday memory?
  • What is your favorite vacation spot? What was your favorite trip?
  • Is there any vacation spot you would never go back to? Why?
  • Is there anywhere you wanted to go but never got the chance?
  • Is there any dream you wanted to pursue you never got around to?
  • How do you most want to be remembered?

Caring for Mom and Dad

If you missed the recent PBS documentary, Caring for Mom and Dad, you can watch it here or order the DVD. http://www.pbs.org/wgbh/caringformomanddad/

Currently, Boulder County is offering a 21 hour course provided by the National Caregiver Training Program starting now through July 30. Also, a 15 hour course entitled, Powerful Tools for the Caregiver, begins June 24-July 29 in Longmont. Call 303-678-6116 for more information.

The annual Senior Law Day will be held on August 22 in Longmont. Pre-registration is available.  Other sites throughout Colorado will be available this summer and fall. Denver will have the event on October 17, 2015. A comprehensive handbook will be provided to all attendees. If you can’t attend in person, you can access the online handbook here. http://www.cobar.org/cle/photos/sld/2015/CSLH2015.pdf

seniorlawhandbook (2)

 

 

Essential Book For Alzheimer’s Care

Megan Carnarius, Executive Director of Balfour Cherrywood Village in Louisville, Colorado has given us a gift for her 25th anniversary in the profession of providing care and training others affected by Alzheimer’s and other dementias. She has written a book entitled, A Deeper Perspective on Alzheimer’s and Other Dementias, that encompasses her many years of extensive knowledge and insight with a disease that touches many. Her practical solutions and humor provide proven solutions for most scenarios that family, friends and professional caregivers will encounter. As she says in her book, “understand the profound lessons and gifts dementia provides.” Several lectures and book signings will be occurring this month at Balfour locations. Lecture and Book Signing

meganbook

 

 

 

Channel 9 Health Fair Screenings

It’s that time of the year again! The annual Channel 9 Health Fair preventative screenings will be available this month throughout Metro Denver. Refer to their web site to find a community location near you. http://www.9healthfair.org/findafair. Some screenings are free and others are available at a minimal cost. Below is a partial list of the screenings being offered.

  • Diabetes Risk Assessment
  • Cardiac Risk Assessment
  • Hand and Foot Screening
  • Hearing Screening
  • Blood Chemistry Screening (28 levels)
  • Prostate Specific Antigen
  • Vitamin D Screening
  • Adult and Child Immunizations
  • Rheumatoid Arthritis Screening
  • Lung Function Screening
  • Memory Screening

 

 

Watch Ken Burns Film On Cancer

Ken Burns, an award-winning director/producer of documentary films, has completed a three-part, six hour film based on the Pulitzer Prize-winning book, “The Emperor of All Maladies: A Biography of Cancer”. It will air on PBS starting on March 30. Dr. Siddhartha Mukherjee, an oncologist/researcher at Dana-Farber Cancer Institute in Boston, published the book in 2010. Ken Burns was deeply affected by cancer at a very young age when his mother died from the disease.

The first of the three segments will take viewers back through history explaining the initial appearances of the disease through the 1960’s. Part Two will begin with President Nixon’s ‘war on cancer’ and the research funding that followed which eventually helped to increase cancer survival rates. Part Three will discuss the advancements and successes in the 21st century with new treatments and therapies as well as the future pipeline for cancer treatments.

Immunotherapy, a treatment that uses a patient’s own immune system to target and attack the cancer cells, will be discussed in the film. If you are interested in learning about the different types of immunotherapy currently available or participating in a clinical trial, visit http://www.theanswertocancer.org

A Sign For Improvement In Assisted Living Care

A recent Denver news story has shocked many caring for individuals with Alzheimer’s disease and various forms of dementia. A serious incident with a fatality occurred between two residents living with Alzheimer’s while under the care of a corporate owned and managed memory care facility. Sadly, this is not surprising to many elder care advocates based on the current regulations for assisted living and especially memory care. In Colorado and other states there is not a required ratio for qualified care professionals to residents. Each community can determine how many staff they want to employ during a shift based on their subjective view of meeting the needs of the residents. Specific to this news story, both residents shared the same room even though it was known and documented previously by the care facility that there were serious physical and verbal altercations between the residents and no apparent effective corrective action was taken by the corporate care facility. The resulting outcome was traumatic with serious legal implications.

Stay tuned to your local news resource in Colorado for more information on this specific case as it develops. The Colorado Department of Public Health and Environment is conducting their investigation. For families in search of care facilities with strong reputations regarding their care environment please contact the Ombudsman office from the Area Agency on Aging which is part of the Denver Regional Council of Governments. Once a loved one is admitted to a community, please be vigilant on managing their care or hire an advocate to monitor the quality of care being provided.

http://www.9news.com/story/news/crime/2015/02/24/assisted-living-home-death/23935225/

New Year Resolution – Join An Online Health Community

If you are entering 2015 as a caregiver or a recently diagnosed patient, you may want to check out the multiple online health communities available for support, treatment options and inspiration. Membership is free. These web sites allow you to share your success with medication, medical providers, and strategies for managing symptoms. You can also learn from others who have firsthand experiences with your illness about helpful resources as well as suggestions on what to avoid. These online communities will play a role in helping you to make better informed decisions about your care plan.

Two of the more popular communities are Inspire.com and PatientsLikeMe.com.

http://www.inspire.com/

http://www.patientslikeme.com/

These companies make money from advertisers and by providing research data to life sciences companies to enable them to develop medication, diagnostic tools, and medical devices to improve patient outcomes and quality of life.

For example, Inspire.com currently has 16 groups dedicated solely to caregivers. There is a group for caregivers dealing with childhood cancer and another for Down syndrome. There are 48 groups dedicated to digestive system disorders like Crohn’s disease and appendicitis. 23 mental health groups are currently available that include Alzheimer’s, autism, and depression.

If you are in need of encouragement and advice from others that understand explicitly what you are going through, then you should consider joining an online health community this year.

 

 

Need Gift Idea For Alzheimer’s Caregiver?

Many families will come together this holiday season to experience a loved one’s dementia has worsened or symptoms have increased to warrant getting a diagnosis. Chicken Soup for the Soul publishes inspirational books on many topics. Due to the rise of Alzheimer’s disease, there is now a book called Living with Alzheimer’s and Other Dementias – 101 Stories of Caregiving, Coping and Compassion. The book is written with short chapters authored by individuals who offer support and coping strategies for spouses, children, grandchildren and friends of a loved one living with Alzheimer’s or another type of dementia. All royalties will go to the Alzheimer’s Association.

http://www.amazon.com/Chicken-Soup-Soul-Alzheimers-Caregiving/dp/1611599342/ref=sr_1_1?ie=UTF8&qid=1418052472&sr=8-1&keywords=chicken+soup+for+the+soul+alzheimers

An article that must be shared is called The Spirit in Alzheimer’s, by Megan Carnarius, RN, Executive Director of Balfour Cherrywood Village. It is apparent after reading the article that Megan has a deep knowledge and genuine compassion for anyone living with Alzheimer’s. She even provides free educational sessions to the public throughout the year. If there were more Megan’s managing the operations of memory care communities, residents would be happier, safer, and treated with the respect they so deserve. If you are fortunate to meet Megan, you will probably hear her say a phrase that she often recites and instills within her staff, “We are much more than the matter of our brains.”
http://www.naturaltransitions.org/2013/07/19/the-spirit-in-alzheimers/

 

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